The boy with butterfly skin is Jonathan Pitre.
About Jonathan Pitre
Jonathan Pitre was a Canadian from Russell, Ontario, who lived from June 2, 2000, to April 4, 2018. He was born with a rare genetic mutation called recessive dystrophic epidermolysis bullosa (RDEB).
What is RDEB?
Recessive dystrophic epidermolysis bullosa (RDEB) is a condition that causes the skin to be extremely fragile. This results in external and internal blistering across the body. These blisters are likened to the fragility of a butterfly's wings, hence the nickname "butterfly skin".
Key aspects of Jonathan Pitre's condition:
- Genetic Mutation: Jonathan's RDEB was the result of a rare genetic mutation.
- Fragile Skin: His skin was incredibly delicate, leading to constant blistering and open sores.
- Internal Blistering: The condition also caused blistering inside his body, affecting his organs.
Jonathan Pitre's Impact
Jonathan's story brought awareness to the challenges of living with RDEB. He became a symbol of courage and resilience while facing immense pain and difficulty.
In conclusion, Jonathan Pitre is known as the boy with butterfly skin due to the severe form of recessive dystrophic epidermolysis bullosa (RDEB) he lived with.
