Sisters by Heart is a support group composed of parents and patients who have been navigating the challenges of Single Ventricle Heart Disease.
Origins and Purpose
This group's formation stems from the shared experiences of families dealing with this specific congenital heart defect. Many members connected before their children were even born, creating a unique bond from the beginning. For over a decade, Sisters by Heart has provided a vital support system for these individuals.
Key Aspects of Sisters by Heart
- Shared Experience: The core of Sisters by Heart is the collective journey of dealing with Single Ventricle Heart Disease.
- Parent and Patient Focus: The group includes both parents of children with the condition and those who are themselves patients.
- Long-Term Support: Having existed for over a decade, Sisters by Heart demonstrates a lasting commitment to its members.
- Early Connections: Many members met during prenatal stages, forging early bonds of support.
- Community: The group creates a strong community for families dealing with single ventricle heart disease.
| Feature | Description |
|---|---|
| Group Type | Support group |
| Primary Focus | Single Ventricle Heart Disease |
| Members | Parents of children with the condition and individuals who have the condition |
| Duration | Exists for more than a decade |
| Connection Start | Many members connected prior to their child's birth. |
| Support Provided | Emotional support, advice, a community of people with similar experiences. |
In essence, Sisters by Heart is not merely an organization but a community forged through shared experiences, providing a necessary lifeline for those navigating the complexities of Single Ventricle Heart Disease.
